Our Patron and Committee Members

Dr. Kathryn Mannix

Patron

Kathryn became our Patron when End of Life Doula UK was launched in June 2018. She has worked as a doctor in palliative medicine in UK hospices, hospitals and patients͛ homes for 30 years. Kathryn relished the close teamwork involved in enabling people to feel well, live well and die well. Each team, she believes, should include the patient and their closest supporters at its heart. She observed the patterns and process of dying, and brought this to public attention through her book 'With the End in Mind.'  She has been pleased to discover that the work of reclaiming normal human dying as a process that can be understood and accompanied in the way the dying person wishes is already flourishing in a variety of ways, including the End of Life Doula movement. See her 15 min talk for 5x15 Events in April 18.

End of Life Doula UK Patron Dr Kathryn Mannix
Dr. Kathryn Mannix – Patron

Greg Wise

Patron

Greg is an actor, filmmaker and writer. He was full-time carer for his sister, Clare,  when she was dying of cancer. The blog writings they undertook at the time became a book - “Not That Kind of Love”. Greg has spoken at various events on his personal experiences and hopes to bring the conversation around dying and death into everyday life. He is thrilled to become the Patron for Living Well Dying Well and End of Life Doula UK.

You can hear Greg talking about how planning for end of life is an act of love here

 

Greg Wise - Patron
Greg Wise - Patron

Professor Allan Kellehear

Ambassador Compassionate Communities

Allan is a British-Australian end of life care academic. He founded the ‘new’ public health movement in palliative care – variously known as ‘health promoting palliative care’, or ‘public health approach’ to palliative care, or the ‘compassionate communities’ movement. He is past president of both Public Health Palliative Care International (PHPCI) and the Association for the Study of Death and Society (ASDS). Allan is currently Emeritus Professor at the University of Bradford, and Associate Director of the charity, Compassionate Communities UK. Among his 25 books, he is best known for: Compassionate Cities: public health and end of life care (Routledge 2005), A Social History of Dying (Cambridge University Press 2007), and The Inner Life of the Dying Person (Columbia University Press 2014). His most recent book is Visitors at the End of Life: Finding meaning and purpose in near-death phenomena (Columbia University Press 2020).

Professor Allan Kellehear - Ambassador Compassionate Communities
Professor Allan Kellehear - Ambassador Compassionate Communities

Emma Clare

Director of End of Life Doula UK Community Interest Company

Acting Chair & Operations Executive

Emma is a Health Psychology PhD researcher, trainee Health Psychologist and End of Life Doula in training. Based in Yorkshire, she describes herself as an activist and nature lover, with a passion for bringing death and dying out of hospitals and back into compassionate communities wherever possible. She has worked as a home carer supporting people on 'fast-track' plans who wished to leave hospital to die at home, in addition to working with looked-after children and in autism, learning disabilities and adult mental health services providing therapy and advocacy. Emma's current research is focused on supporting individuals (both professionals and the public) to develop death competency – that is, our skills and capabilities in dealing with death and dying.

 

Photo of Emma Clare
Emma Clare - Director & Operations Executive

Aly Dickinson

Director of End of Life Doula UK Community Interest Company

Operations Executive

Aly is Secretary of End of Life Doula UK and a practising doula based in Devon, in a home she shares with 3 cats and 45 patio pots! Aly trained with Living Well Dying Well after years of working in HR, she has volunteered in local hospices and works out and about in the community as a doula and raising awareness of all things death and dying related. Aly facilitates community events such as end of life planning, funeral planning, death cafes, information sessions and Bereavement Cafes.

 

Photo of Aly Dickinson
Aly Dickinson – Director & Operations Executive

Nett Furley

Director of End of Life Doula UK Community Interest Company

Executive Director of Operations

Nett was in one of the first Living Well Dying Well  training cohorts and has been an end of life doula since 2010. Her passion is supporting people at the end of their life, and in grief through storytelling, funerals and memorials.

As well as supporting individuals who are approaching the end of their lives and the people important to them, she uses her doula’ing experience to influence NHS policies and guidelines by sitting on national NICE clinical, service delivery and quality standard committees on end of life and the national audit for care at end of life (NACEL).

Her career has involved senior roles in NHS and not for profit organisations e.g. Director of Primary Care, CEO of a carers charity, a community regeneration charity and a community environmental charity and Assessment Lead at the Audit Commission. She is a trained nurse and has been a funeral director.

Her current roles include: Humanist Funeral, Memorial, Vow Renewal and Wedding Celebrant; LWDW Assessor of diploma portfolios; Health and Care Consultant for not for profit and statutory organisations; Mentor, Coach and Trainer; Steward at Liverpool Philharmonic Hall.

 

Photo of Nett Furley, End of Life Doula UK
Nett Furley - Executive Director of Operations

Amanda Blainey

Diversity and Inclusion

As the diversity lead for EOLDUK Amanda works publicly and internally to shine a light on the need for inclusivity in the doula movement's own culture and community. It is by exploring our unconscious biases that the support we offer as doulas can come from a more compassionate place and be available to everyone, including those from marginalised groups in the wider community.

Born to Sri Lankan parents in a culture where death felt more accepted, and growing up with a mother whose own mother died at a very early age, death was omnipresent throughout Amanda’s childhood. As an death doula Amanda champions inclusivity and belonging in end of life care.

 

Photo of Amanda Blainey, Diversity and Inclusion, End of Life Doula UK
Amanda Blainey, Diversity and Inclusion

Lynne Carnie

Membership Secretary of End of Life Doula UK

Lynne is Membership Secretary of End of Life Doula UK.  Lynne lives in Surrey and after 30 years working in logistics for large corporations, found the training of Living Well Dying Well immensely empowering in supporting others at end of life.  She is a volunteer for Princess Alice Hospice and is keen to promote awareness, in the community, of the work of End of Life Doula UK in all things related to end of life. Away from her Doula work, Lynne enjoys getting out in the countryside and immersing herself in nature.

Photo of Lynne Carnie, Membership Secretary, End of Life Doula UK
Lynne Carnie, Membership Secretary

Mary Clear MBE

Community Activism

Mary is a community activist, her notable accomplishments are the Pushing Up Daisies festival and Incredible Edible in Todmorden. Mary is also an End of Life Doula, a dreamer and schemer. Ultimately she is an Activist, in a hurry to do her bit for a better world. Mary believes you should 'be the change you want to see' and thinks nothing can be nicer than feeding a crowd round the kitchen table. 

photo of Mary Clear
Mary Clear – Community Activism

Danny Cooklin

Company Secretary of End of Life Doula UK

As well as his Doula practice, Danny is an audio engineer with a passion for fixing things that are beyond repair. He believes that by engaging with death and dying it is possible to transform the way we live and he is passionate about community self-care particularly surrounding the time of death.  Danny, lives in Lewes and  has been the Regional Lead for End of Life Doula UK for the South East before becoming a Committee Member.  Danny assists with the Living Well Dying Well  foundation training course. He also volunteers at his local hospice and is an Independent Visitor for Brighton & Hove children’s services.

Photo of Danny Cooklin, Company Secretary, End of Life Doula UK
Danny Cooklin, Company Secretary

Hermione Elliott

Honorary Officer

Hermione has a background in nursing, midwifery, counselling, palliative care and training and is the founder of Living Well, Dying Well. She has worked internationally and lived in Japan for four years, where her book Gan No Serufu Hiringu, a self-help guide for people with cancer, was published. She is passionate about care of the whole person – physical, emotional and spiritual – and about upholding dignity and self-determination at every stage of life. Hermione pioneered the End of Life Doula Training in the UK establishing LWDW Training Ltd as a Learning Centre with the courses externally quality assured by the Crossfields Institute.  Her vison is that there will, one day, be an End of Life Doula in every community.

 

photo of Hermione Elliot
Hermione Elliott – Director Living Well Dying Well

Judy Knox

Joint Regional Lead for London, and co-opted onto the Committee in recognition of her continued and ongoing organisational support

Judy has been involved with End of Life Doula UK since she began her training with Living Well Dying Well in 2019. She is a doula with an interest in living life to the full and all things related to death, dying, grief and bereavement. Judy volunteers at her local hospice and hopes to become more involved with community initiatives as the world opens up again post Covid. Professionally, Judy is an experienced Administrator with a demonstrated history of working in the primary/secondary education industry, not for profit organisations, event management and the NHS. She loves music and is a former Trustee of Pavilion Opera Educational Trust (charity now folded) working with primary school children across London. She volunteers at a local annual music festival, Proms at St. Jude’s.

Photo of Judy Knox, End of Life Doula UK
Judy Knox, co-Regional Lead & Committee Member

Ninon van der Kroft

Health and Social Care

Ninon is an End of Life Doula and death educationist. Trained as a social worker with over 30 years' experience, she has worked at St Christopher's Hospice in London, assisting patients and their loved ones before and after death. She has gone on to become one of the trainers with Living Well Dying Well. She is also an experienced facilitator and trainer, teaching internationally about difficult conversations, forgiveness and intimacy at end of life, advance planning for end of life and death and dying

Photo of Ninon Van Der Kroft, End of Life Doula UK
Ninon Van Der Kroft - Health and Social Care

Phil Parker

Advisor

Phil comes to End of Life Doula UK not as a doula but as someone who’ll be helping us in our future audio/visual projects.  His work as a director includes short documentary GAZE (Channel 4) which highlighted the veil of shame that often surrounds the human body, and for the past 8 years he’s worked with filmmaker and end of life doula Rebecca Kenyon at mote of dust films - one of their films being Holding Space, a short film about the relationship between doula and dying partner.  In his spare time he made several short films for charity Together for Short Lives, interviewing young adults on their experiences of living with life limiting conditions.  Also, for a number of years, he volunteered at a therapeutic community supporting those recovering from drug and alcohol abuse.  Previously, Phil attended Lancaster University; here he gained an MA in Cultural Studies that focussed on the different ways disabled, and queer bodies are represented.  Having grown up in deepest, darkest Cumbria, he is now based near Lancaster. He loves to swim and once met Albert Maysles in a lift.

Photo of Phil Parker
Phil Parker - Advisor

Barbara Bird

Adviser

Barbara Bird is a 46 year old American ex-pat who was diagnosed with stage 4 breast cancer in April 2018. Since then she has been engaged with preparing for end of life with her Doula, Sam Hill. Her belief that individuals need and deserve a support network at such a significant time of life is the motivation behind her contacting LWDW. Through art, and her involvement in community projects, she tries to highlight and address the taboos surrounding death and dying within our Western culture. She believes that spirituality lies within and that everyone is entitled to a ‘good death’ regardless of religious beliefs or practices.

Barbara died on 9 February 2020.  She had the death that she wished for and planned.  We will miss her dreadfully.  Thank you Barbara for showing us how life can be lived with joy, fulfilment and kindness until death - we learnt so much from you.  You were a Founder Committee Member for End of Life Doula UK - always generous with your support and advice - a legacy we’ll not forget. THANK YOU

 

Photo of End of Life Doula UK Advisor, Barbara Bird
Barbara Bird – Adviser to the Committee June 2018 - Feb 2020
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